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srfcure.org

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About Scleroderma Research Foundation

The Scleroderma Research Foundation is a non-profit, 501 organization based in San Francisco. The Scleroderma Research Foundation is a nonprofit investor in medical research to find improved therapies and a cure for scleroderma.

Scleroderma Research Foundation Headquarter Location

220 Montgomery Street Suite 484

San Francisco, California, 94104,

United States

800-441-2873

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Latest Scleroderma Research Foundation News

Bob Saget and Susan Feniger host the first global edition of Cool Comedy - Hot Cuisine, raising $1.1M for the Scleroderma Resear...

Oct 20, 2020

The complete event is now streaming on YouTube for two weeks only News provided by Share this article SAN FRANCISCO, Oct. 20, 2020 /PRNewswire/ -- Last night, Bob Saget turned to comedy to shed light on a very heavy subject, presenting and curating the Scleroderma Research Foundation's (SRF's) signature annual fundraising event, Cool Comedy - Hot Cuisine, and raising $1.1M for SRF. Audiences from around the world participated in a re-imagined virtual gathering of comedy greats and music legends as it broadcast on YouTube, expanding awareness about the complex autoimmune disease. The event is now streaming for two weeks only, at youtube.com/watch?v=v8alCv-fX60   Bob Saget, an SRF Board Member who lost his sister to scleroderma, hosted the evening alongside fellow board member and Top Chef Master, Susan Feniger. The star-studded event features appearances by Jason Alexander, Jack Black, Bill Burr, Jim Gaffigan, Jeff Garlin, Nikki Glaser, Regina Hall, Ken Jeong, Queen Latifah, George Lopez, Howie Mandel, Ray Romano, Jeff Ross, Sarah Silverman, and John Stamos, with special music performances by Kelly Clarkson, John Mayer, and Pat Monahan. With many personal stories of how scleroderma has impacted their lives, each guest helped to amplify the vital work of SRF and its commitment to finding a cure. After selling out venues in New York, Los Angeles, San Francisco, and Las Vegas since its inception in 1986, for the first time, Cool Comedy - Hot Cuisine welcomed audiences to experience a heartfelt night of laughs and inspiration from the comfort of their own homes. Viewers from around the world joined in on the virtual gathering of comedy greats and music legends, all of whom are generously donating their time and talents to support SRF's innovative research and help raise funds and awareness for this rare and often deadly autoimmune disease. The need for visibility and research funding remains crucial for patients and their families. As Bob Saget explains, his commitment is very personal; "I fortuitously became involved with the Scleroderma Research Foundation in 1992. Sharon Monsky, the Founder and first CEO just cold called and asked me to be part of an event called "Cool Comedy Hot Cuisine" and said that Robin Williams had done the very first one. I couldn't say "no" to this wonderful woman, who soon became my dear friend. Two years later my sister, Gay, was diagnosed with this disease-- and by the third time I hosted the event in 1994, she had lost her life to scleroderma. It's my life's mission to support those affected and do what I can to help find a cure for this horrible disease. I'm so proud to be on the board of this amazing organization." Complementing the virtual experience was an online silent auction featuring one-of-a-kind packages such as the chance to join Bob Saget and Joel McHale for tequila shots in a Zoom room, a virtual cocktails & conversation with Susan Feniger and Superstore star Ben Feldman, and a private, personalized workout with legendary distance swimmer, Diana Nyad. The 2020 Cool Comedy - Hot Cuisine was presented by Actelion, a Janssen Pharmaceutical Company of Johnson & Johnson. All funds raised benefit the Scleroderma Research Foundation, and advance online registration to watch this unforgettable evening is required. For more information, visit  www.srfcure.org . More about Scleroderma and the Scleroderma Research Foundation: Cool Comedy - Hot Cuisine benefits the Scleroderma Research Foundation, the country's first and leading nonprofit investor in medical research into scleroderma. Since its founding in 1987 by patient and advocate Sharon Monsky, the SRF has taken a collaborative approach, bringing together some of the world's top scientists and medical institutions to unravel the mystery of this complex autoimmune disease. Sharon lost her battle to the disease in 2002, but her vision lives on today. The word scleroderma literally means "hard skin," but the disease is much more, often affecting the internal organs with lethal consequences. Although scleroderma strikes people of all ages and ethnicities, eighty percent of those afflicted with the disease are women. The symptoms and severity of scleroderma vary from one person to another and the course of the disease is often unpredictable. While significant progress has been made in managing the symptoms and some of the most serious complications of scleroderma, currently, there is no way to prevent scleroderma and there is no cure. The Scleroderma Research Foundation is singularly focused on bringing the best minds in science together to find a cure and depends on charitable gifts from individuals and corporations to achieve that goal. Through the generosity of donors and support from events like Cool Comedy - Hot Cuisine, , the SRF has raised over $45 million dollars to fund and facilitate the most promising, highest quality research at top universities such as Johns Hopkins, Stanford, and UCSF, aimed at improved treatments and - one day -  a world where no one will suffer from scleroderma. SOURCE Scleroderma Research Foundation

Scleroderma Research Foundation Partners & Customers

2 Partners and customers

Scleroderma Research Foundation has 2 strategic partners and customers. Scleroderma Research Foundation recently partnered with Apricus Biosciences on August 8, 2014.

Date

Type

Business Partner

Country

News Snippet

Sources

8/8/2014

Partner

Apricus Biosciences

United States

Apricus Biosciences Announces Multi-Year Partnership With the Scleroderma Research Foundation

SAN DIEGO , Aug. 8 , 2014 -- Apricus Biosciences , Inc. , a pharmaceutical company focusing on the development and commercialization of novel therapeutics for men 's and women 's health , today announced a multi-year partnership agreement with the Scleroderma Research Foundation to support the foundation 's activities and the further progress of Scleroderma Research Foundation 's groundbreaking research programs .

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Date

8/8/2014

Type

Partner

Licensee

Business Partner

Apricus Biosciences

Country

United States

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News Snippet

Apricus Biosciences Announces Multi-Year Partnership With the Scleroderma Research Foundation

SAN DIEGO , Aug. 8 , 2014 -- Apricus Biosciences , Inc. , a pharmaceutical company focusing on the development and commercialization of novel therapeutics for men 's and women 's health , today announced a multi-year partnership agreement with the Scleroderma Research Foundation to support the foundation 's activities and the further progress of Scleroderma Research Foundation 's groundbreaking research programs .

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