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Foundation Fighting Blindness company logo
Non-Profit Foundation
HEALTHCARE | Medical Facilities & Services / Medical Laboratories & Research
fightingblindness.org

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Investments

5

Portfolio Exits

1

Funds

1

Partners & Customers

10

About Foundation Fighting Blindness

The Foundation Fighting Blindness is a national nonprofit driving blindness research that will lead to preventions, treatments and cures for retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases that affect 10 million Americans. With a network of 50 chapters, the Foundation also provides free disease information and low vision resources to affected individuals and their families. Most recently, a breakthrough Foundation-funded study using gene therapy restored significant vision in children and young adults who were previously blind, paving the way for using this method to treat a wide variety of retinal degenerative diseases, and proving a cure is in sight.

Foundation Fighting Blindness Headquarter Location

7168 Columbia Gateway Drive Suite 100

Columbia, Maryland, 21046,

United States

410-423-0600

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Latest Foundation Fighting Blindness News

Foundation Fighting Blindness to Host VISIONS 2022 Conference

May 12, 2022

News provided by Share this article Share this article The national conference will be held on June 17–18, featuring sessions with the latest research advancements, practical adapting and thriving, and an opportunity to connect with the blind and low vision community. COLUMBIA, Md., May 12, 2022 /PRNewswire/ -- The Foundation Fighting Blindness , the world's leading organization committed to finding treatments and cures for blinding retinal diseases, will host its VISIONS 2022 national conference at Disney's Coronado Springs Resort on June 17–18, 2022. This one-of-a-kind biennial event will provide attendees the opportunity to hear about exciting advancements in research, gain practical skills for coping with vision loss, learn about products and services that can improve their lives, and connect with others from the blind and low vision community from across the country. The conference is designed specifically for individuals and families affected by blinding retinal diseases such as age-related macular degeneration, retinitis pigmentosa, Usher syndrome, Stargardt disease, Leber congenital amaurosis, and other related conditions. These diseases cause progressive blindness and affect more than 10 million Americans and millions more around the world. More than 500 individuals from the blind and low vision community are expected to attend VISIONS 2022. Keynote speakers will include Chad E. Foster, a successful corporate executive at Red Hat/IBM, international motivational speaker, and the author of Blind Ambition™, and Marsha Link, principal of Link Consulting, who has a broad range of expertise as a clinician, executive coach, human resource professional, and educator. "We are very excited to host VISIONS 2022 in person again and to share the tremendous progress being made by Foundation-funded scientists and researchers within our community," said Benjamin Yerxa, PhD, chief executive officer, Foundation Fighting Blindness. "As the world leader in retinal research funding, this is truly a one-of-a-kind experience for those with blinding retinal diseases that they won't want to miss." Science-focused programming will cover information on optogenetics, genetic technologies, genetic testing and counseling through the Foundation's My Retina Tracker Registry®, stem cells in retinal disease, and clinical trial participation. Other programming will include disease-specific clinical updates and sessions on adapting and thriving, including the latest on assistive technology, blind athletes breaking barriers, cane safety and mobility, and how to cope with anxiety, depression, and stress related to vision loss or serving in a helper role. During VISIONS 2022, the Foundation will present the Beverly and Bernard Berman Builders of Sight Award and Lulie's Light Award. The Beverly and Bernard Berman Builders of Sight Award will honor a volunteer for their extraordinary commitment to the Foundation's mission. The Lulie's Light Award will recognize Chapter's contributions that exemplify Lulie Gund's passion and devotion to the Foundation with three awards – The Community Champion Award, The Pathmaker Award, and The Guiding Vision Award. VISIONS 2022 sponsors include Platinum Partner, Janssen Global Services, LLC, one of the Janssen Pharmaceutical Companies of Johnson & Johnson; Gold Partners, Genentech, and Spark Therapeutics; Silver Partner, AGTC; and Bronze Partners, Apellis, Nacuity, REGENXBIO and Two Blind Brothers. To register for VISIONS 2022 and get the latest updates on the event, visit www.FightingBlindness.org/VISIONS2022 . About the Foundation Fighting Blindness Established in 1971, the Foundation Fighting Blindness is the world's leading private funding source for retinal degenerative disease research. The Foundation has raised more than $856 million toward its mission of accelerating research for preventing, treating, and curing blindness caused by the entire spectrum of blinding retinal diseases including: retinitis pigmentosa, macular degeneration, and Usher syndrome. Visit www.FightingBlindness.org  for more information. Media Contact:

Foundation Fighting Blindness Investments

5 Investments

Foundation Fighting Blindness has made 5 investments. Their latest investment was in Usher III Initiative as part of their Grant on July 7, 2021.

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Foundation Fighting Blindness Investments Activity

investments chart

Date

Round

Company

Amount

New?

Co-Investors

Sources

7/6/2021

Grant

Usher III Initiative

$1M

Yes

2

10/20/2020

Series A - II

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$99M

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10

5/6/2020

Series A

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$99M

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10

7/10/2017

Series A

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$99M

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10

9/21/2011

Grant - III

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$99M

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0

Date

7/6/2021

10/20/2020

5/6/2020

7/10/2017

9/21/2011

Round

Grant

Series A - II

Series A

Series A

Grant - III

Company

Usher III Initiative

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Amount

$1M

$99M

$99M

$99M

$99M

New?

Yes

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Co-Investors

Sources

2

10

10

10

0

Foundation Fighting Blindness Portfolio Exits

1 Portfolio Exit

Foundation Fighting Blindness has 1 portfolio exit. Their latest portfolio exit was Applied Genetic Technologies on March 27, 2014.

Date

Exit

Companies

Valuation
Valuations are submitted by companies, mined from state filings or news, provided by VentureSource, or based on a comparables valuation model.

Acquirer

Sources

3/27/2014

IPO

$99M

1

Date

3/27/2014

Exit

IPO

Companies

Valuation

$99M

Acquirer

Sources

1

Foundation Fighting Blindness Fund History

1 Fund History

Foundation Fighting Blindness has 1 fund, including Retinal Degeneration Fund.

Closing Date

Fund

Fund Type

Status

Amount

Sources

10/23/2018

Retinal Degeneration Fund

$70M

1

Closing Date

10/23/2018

Fund

Retinal Degeneration Fund

Fund Type

Status

Amount

$70M

Sources

1

Foundation Fighting Blindness Partners & Customers

10 Partners and customers

Foundation Fighting Blindness has 10 strategic partners and customers. Foundation Fighting Blindness recently partnered with InformedDNA on March 3, 2022.

Date

Type

Business Partner

Country

News Snippet

Sources

3/8/2022

Partner

United States

Foundation Fighting Blindness and InformedDNA Partner to Engage and Screen Patients for ProQR’s Pivotal Usher Syndrome and Retinitis Pigmentosa Clinical Trials — Foundation Fighting Blindness

COLUMBIA , Maryland -- March 8 , 2022 -- The Foundation Fighting Blindness , the world 's leading organization committed to finding treatments and cures for blinding retinal diseases , is partnering with ProQR Therapeutics and InformedDNA ® to accelerate patient identification and enrollment in clinical research for people with Usher syndrome or non-syndromic retinitis pigmentosa due to mutations in exon 13 of the USH2A gene .

1

3/8/2022

Partner

Netherlands

07:30 ET Foundation Fighting Blindness and InformedDNA Partner to Engage and Screen Patients for ProQR's Pivotal Usher Syndrome ...

COLUMBIA , Md. , March 8 , 2022 / PRNewswire / -- The Foundation Fighting Blindness , the world 's leading organization committed to finding treatments and cures for blinding retinal diseases , is partnering with ProQR Therapeutics and InformedDNA ® to accelerate patient identification and enrollment in clinical research for people with Usher syndrome or non-syndromic retinitis pigmentosa due to mutations in exon 13 of the USH2A gene .

1

2/6/2020

Partner

Netherlands

ProQR Therapeutics Teams Up with the Foundation Fighting Blindness and Blueprint Genetics to Support the My Retina Tracker® Program for People Living with Inherited Retinal Diseases—Foundation Fighting Blindness

`` The My Retina Tracker Program is a key initiative that supports the development of treatments and cures for inherited retinal diseases and we are delighted to be expanding our partnership with ProQR Therapeutics N.V. '' , says Brian Mansfield , PhD , Executive Vice President Research , Interim Chief Scientific Officer of the Foundation Fighting Blindness .

1

10/2/2019

Partner

United States, and Finland

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10

6/11/2018

Partner

United States

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10

Date

3/8/2022

3/8/2022

2/6/2020

10/2/2019

6/11/2018

Type

Partner

Partner

Partner

Partner

Partner

Business Partner

Country

United States

Netherlands

Netherlands

United States, and Finland

United States

News Snippet

Foundation Fighting Blindness and InformedDNA Partner to Engage and Screen Patients for ProQR’s Pivotal Usher Syndrome and Retinitis Pigmentosa Clinical Trials — Foundation Fighting Blindness

COLUMBIA , Maryland -- March 8 , 2022 -- The Foundation Fighting Blindness , the world 's leading organization committed to finding treatments and cures for blinding retinal diseases , is partnering with ProQR Therapeutics and InformedDNA ® to accelerate patient identification and enrollment in clinical research for people with Usher syndrome or non-syndromic retinitis pigmentosa due to mutations in exon 13 of the USH2A gene .

07:30 ET Foundation Fighting Blindness and InformedDNA Partner to Engage and Screen Patients for ProQR's Pivotal Usher Syndrome ...

COLUMBIA , Md. , March 8 , 2022 / PRNewswire / -- The Foundation Fighting Blindness , the world 's leading organization committed to finding treatments and cures for blinding retinal diseases , is partnering with ProQR Therapeutics and InformedDNA ® to accelerate patient identification and enrollment in clinical research for people with Usher syndrome or non-syndromic retinitis pigmentosa due to mutations in exon 13 of the USH2A gene .

ProQR Therapeutics Teams Up with the Foundation Fighting Blindness and Blueprint Genetics to Support the My Retina Tracker® Program for People Living with Inherited Retinal Diseases—Foundation Fighting Blindness

`` The My Retina Tracker Program is a key initiative that supports the development of treatments and cures for inherited retinal diseases and we are delighted to be expanding our partnership with ProQR Therapeutics N.V. '' , says Brian Mansfield , PhD , Executive Vice President Research , Interim Chief Scientific Officer of the Foundation Fighting Blindness .

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Sources

1

1

1

10

10

Foundation Fighting Blindness Team

2 Team Members

Foundation Fighting Blindness has 2 team members, including current Chief Executive Officer, Benjamin R Yerxa.

Name

Work History

Title

Status

Benjamin R Yerxa

Chief Executive Officer

Current

Jason Menzo

Chief Operating Officer

Current

Name

Benjamin R Yerxa

Jason Menzo

Work History

Title

Chief Executive Officer

Chief Operating Officer

Status

Current

Current

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