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Corporation
cureduchenne.org

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Investments

2

Portfolio Exits

1

Partners & Customers

7

About CureDuchenne

CureDuchenne was founded in 2003 with a focus on saving the lives of those with Duchenne muscular dystrophy, a disease that affects more than 300,000 boys worldwide. With support from CureDuchenne, three pharmaceutical treatments could be approved by the FDA within the next year. These treatments may lessen the effects of the disease for those with certain mutations of Duchenne, but there is still much to be done to find a cure.

CureDuchenne Headquarter Location

1400 Quail Street

Newport Beach, California, 92660-2730,

United States

949-872-2552

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Latest CureDuchenne News

CureDuchenne FUTURES National Conference to Be Held May 27-29

Mar 30, 2022

Registration is now open for the CureDuchenne FUTURES National Conference , which will be held from May 27-29, 2022 in Orlando, Florida. FUTURES is a 3-day information-packed event focused on bringing education, resources, and connection to the Duchenne community. The annual event will take place as a hybrid event again this year, both online and in-person, at the JW Marriott Orlando, Grande Lakes. This year’s conference agenda and special events will focus on Building Community. CureDuchenne will offer insightful and interactive presentations on a variety of relevant topics including the latest research and therapies for individuals with Duchenne muscular dystrophy, an exhibitor showcase, social events for the whole family, an e-gaming lounge, and more. “We’re looking forward to reconnecting with the Duchenne community, both in person and virtually, to share valuable resources and help improve the lives of those affected by Duchenne,” said Debra Miller, founder and CEO of CureDuchenne. “As an organization, we have made important progress in the last year and are eager to provide Duchenne families with the information, support and community they need to live the best and longest life possible.” Keynote speakers Justin Skeesuck and Patrick Gray will kick off the event with the inspiring story of their 500-mile wheelchair journey across northern Spain on the Camino de Santiago, which was told in an extraordinary documentary titled  I’ll Push You . “We’re so excited to be a part of this year’s FUTURES National Conference,” said Justin Skeesuck. “Our story is a testament to the power of community and the importance of relationships as we face the struggles of life. We hope to inspire those affected by Duchenne muscular dystrophy.” Whether enjoyed virtually or in person, FUTURES attendees are guaranteed exclusive access to important updates on therapeutic research, thoughtful discussions on the emerging approaches to care that enhance quality of life, a wealth of valuable resources and time well-spent with the Duchenne community. The conference includes a special gene therapy brunch & learn, moderated by Dr. Jeffrey Chamberlain, a professor in the Departments of Neurology, Medicine, and Biochemistry, the McCaw Endowed Chair in Muscular Dystrophy at the University of Washington School of Medicine, and Director of the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center of Seattle. Dr. Chamberlain will be accompanied by a panel of specialists as they give a brief overview of the strategy guiding efforts in gene therapy and gene editing, as well as critical updates from the companies in this space, followed by a discussion. The symposium will be followed by an exclusive look at what’s next for the gene therapy and gene editing pipeline. CureDuchenne will offer on-site childcare and activities for the whole family, and the  Duchenne Family Assistance Program  offers assistance in the form of travel grants for registration fees, hotel rooms and travel. Registration for 2022 CureDuchenne FUTURES is currently open. In-person registration fee is $100 per adult. Virtual attendance is free of charge. There is also no charge for adult individuals with Duchenne and children under 16 years of age. [Source(s): CureDuchenne, PR Newswire]

CureDuchenne Investments

2 Investments

CureDuchenne has made 2 investments. Their latest investment was in RASRx as part of their Corporate Minority on January 1, 2016.

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CureDuchenne Investments Activity

investments chart

Date

Round

Company

Amount

New?

Co-Investors

Sources

1/6/2016

Corporate Minority

RASRx

Yes

1

1/6/2006

Seed VC

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$99M

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0

Date

1/6/2016

1/6/2006

Round

Corporate Minority

Seed VC

Company

RASRx

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Amount

$99M

New?

Yes

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Co-Investors

Sources

1

0

CureDuchenne Portfolio Exits

1 Portfolio Exit

CureDuchenne has 1 portfolio exit. Their latest portfolio exit was Prosensa on June 28, 2013.

Date

Exit

Companies

Valuation
Valuations are submitted by companies, mined from state filings or news, provided by VentureSource, or based on a comparables valuation model.

Acquirer

Sources

6/28/2013

IPO

$99M

1

Date

6/28/2013

Exit

IPO

Companies

Valuation

$99M

Acquirer

Sources

1

CureDuchenne Partners & Customers

7 Partners and customers

CureDuchenne has 7 strategic partners and customers. CureDuchenne recently partnered with BC Platforms on June 6, 2021.

Date

Type

Business Partner

Country

News Snippet

Sources

6/18/2021

Licensor

Switzerland

BC Platforms Forms Data Management Alliance With Nonprofit CureDuchenne

Through the collaboration , CureDuchenne has integrated BC Platforms for data integration , management , analysis , and sharing into its CureDuchenne global data hub .

2

6/18/2021

Partner

Switzerland

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10

10/17/2018

Partner

United States

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10

10/4/2018

Partner

United States

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10

6/17/2014

Partner

United States

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10

Date

6/18/2021

6/18/2021

10/17/2018

10/4/2018

6/17/2014

Type

Licensor

Partner

Partner

Partner

Partner

Business Partner

Country

Switzerland

Switzerland

United States

United States

United States

News Snippet

BC Platforms Forms Data Management Alliance With Nonprofit CureDuchenne

Through the collaboration , CureDuchenne has integrated BC Platforms for data integration , management , analysis , and sharing into its CureDuchenne global data hub .

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Sources

2

10

10

10

10

CureDuchenne Team

1 Team Member

CureDuchenne has 1 team member, including former Senior Director, Christy Anderson.

Name

Work History

Title

Status

Christy Anderson

Senior Director

Former

Name

Christy Anderson

Work History

Title

Senior Director

Status

Former

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